Privacy Policy

Project EPIC ("EPIC", "we", "our", "us") is committed to protecting your privacy and handling your personal information responsibly and in accordance with Australian privacy laws.

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This Privacy Policy explains how we collect, use, store, and disclose personal information through the Project EPIC website.

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Project EPIC is a youth-focused initiative that provides information, resources, research updates, and support pathways related to ADHD and mental health for young people in Australia.

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1. What information we collect

We may collect the following types of information:

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a) Personal information you provide directly

This may include:

• your name

• your email address

• information you choose to include in contact forms or emails

• information you submit through expressions of interest, surveys, feedback forms, or event registrations

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You may browse the publicly available areas of our website without providing personal information. Access to some sections and resources requires a member account. Where you choose to register, we may collect personal information necessary to create, verify and administer your account, including your name, email address and account credentials.

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b) Website usage information

Wix may automatically collect limited technical information, including:

• operating system

• browser type

• device type

• pages visited within our website

• time spent on these pages

• referring websites (i.e., the website that directed you to our website)

• internet service provider

• IP address 

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This information helps us improve the website and understand how visitors interact with and use our content.

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c) Sensitive information

Because EPIC relates to mental health and ADHD, some information you choose to provide may be considered "sensitive information" under Australian privacy law.

 

Sensitive information is a type of personal information that is given higher level protection under Australian privacy law. It includes details about an individual's:

• health and genetic information;

• racial or ethnic origin;

• political opinions;

• membership of a political association;

• religious beliefs or affiliations;

• philosophical beliefs;

• membership of a trade union;

• sexual preferences or practices; or

• criminal record.

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We will only intentionally collect sensitive information where it is reasonably necessary for our activities and you have provided informed consent. Please avoid including sensitive information in website forms, discussion boards, comments, or other interactive areas unless we have specifically asked you to provide it and you have provided consent. If you voluntarily provide sensitive information, we will handle it in accordance with this Privacy Policy and applicable privacy laws. Where the information is not reasonably necessary for our activities, we may delete, de-identify, or refrain from using it.

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2. How we collect information

We may use third-party platforms and embedded website tools to support website functionality, communication, event registration, feedback collection, and research engagement activities.

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The platforms may include:

• Wix and affiliated analytics services

• Qualtrics

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Information submitted through these tools may be stored on secure third-party servers, including servers located outside Australia.

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We take reasonable steps to ensure third-party provides used by Project EPIC have appropriate privacy and security practices in place. Users should be aware the third-party platforms may also collect personal information in accordance with their own privacy policies. You can view Wix's Privacy Policy here and Qualtrics' Privacy Policy here.

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3. How we use information

We may use information collected through the website to:

• respond to enquiries or messages

• provide requested information or resources

• improve website functionality or accessibility

• understand how people engage with the website

• share updates about EPIC activities, events, or opportunities

• support research translation and community engagement activities

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We do not sell or share personal information to third parties.

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3. Research participation and data

Using the EPIC website does not automatically make you a participant in research. The personal information you choose to share on our website is not research data and will not be used for research purposes unless explicitly stated.

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We may advertise research opportunities on the website. ​

If you choose to participate in research connected to Project EPIC:

• the research will have ethical approval from an authorised ethical review board

• you will receive a Participant Information Form outlining the purpose of the research, including any associated risks and benefits

• you will be asked to provide informed consent before taking part in the research

• all research data will be collected and stored according to the approved data management processes

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4. Cookies and analytics

The EPIC website may use cookies or similar technologies to:

• remember user preferences

• improve website performance

• analyse website traffic and engagement

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We may use services such as:

• Wix Analytics

• Google Analytics

• other website performance or accessibility tools

These services may collect technical information about how users interact with the website.

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You can disable cookies through your browser settings, though some website features may not function properly (for example, keeping track of your place when navigating a series of resources).

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5. Third-party links

Our website may contain links to external websites, services, or resources.

 

We are not responsible for the privacy practices or information storage of third-party websites. We encourage users to read the privacy policies of any external sites they visit.

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6. How we store and protect information

We take reasonable steps to protect personal information from:

• misuse

• interference

• loss

• unauthorised access

• modification

• disclosure

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Information may be stored using secure digital platforms, including website hosting and cloud-based services used by Project EPIC and affiliated organisations (e.g., Curtin University and OneDrive). Personal information stored externally to our website will always be password protected.

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7. Children and young people

Project EPIC is designed for young people, including adolescents.

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We encourage young people to involve a trusted adult when appropriate, particularly when sharing personal information online.

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If we become aware that personal information has been collected from a child inappropriately or without required consent, we will take reasonable steps to delete that information.

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8. Disclosure of information

Project EPIC may operate in collaboration with affiliated institutions and organisations, including Curtin University.

Some activities connected to Project EPIC may involve research conducted under institutional ethics approval and governance processes. Where applicable, the collection, storage, use, and management of research participant information will be handles in accordance with relevant ethics, privacy, and data management requirements.

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Using the EPIC website does not automatically make someone a research participant. Where individuals are invited to participate in research activities, additional participant information and consent materials will be provided separately.

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We may disclose personal information:

• where required by law

• where necessary to protect someone's safety

• to trusted service providers who support website operations (such as hosting or analytics providers affiliated with Wix)

• to affiliated institutions involved in Project EPIC operations, where appropriate (for example, when registering for an EPIC event, your registration details may be stored on Curtin University's secure storage drives for operations like planning)

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We take reasonable steps to ensure third parties handle information securely and appropriately.

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9. Access, correction, and removal

You may request access to personal information we hold about you and request corrections if information is inaccurate or outdated or deletion if you want your information removed from our website.

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To request access, correction, or removal, please contact us using the details below.

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10. Contact us

If you have questions about this Privacy Policy or how your information is handled, or to request access to, correction to, or removal of your data, please contact:

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Dr Lexy Staniland

greetings@epicadhdproject.com

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11. Changes to this policy

We may update this Privacy Policy from time to time. Any changes will be published on this page with an updated version date.

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